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East Elgin Sportsmen's Association

 

 

Early 1960s

Now

 

Most Canadian children with cystic fibrosis did not live long enough to attend kindergarten.

 

Canadians with cystic fibrosis are expected to live into their late 30s, and even beyond.

 

Children with cystic fibrosis slept in mist tents; it was thought that the moist environment would help relieve congestion.

 

Mist tents encouraged infections. Current treatments for congestion are physiotherapy and medication.

 

People with cystic fibrosis were advised to follow a low-fat diet to avoid stool problems.

 

A high-fat diet has helped improve growth and development in people with CF.

 

The Foundation had four chapters by the end of 1960, all in Ontario.

 

The Foundation has 50 chapters across Canada - a presence in every province.

 

The Foundation’s newsletter, Candid Facts, was sent to 300 volunteers and supporters.

 

Candid Facts is distributed to approximately 7,250 people and is posted on the CCFF Web site.

 

When the Canadian Cystic Fibrosis Foundation was established, there were no permanent CF clinics in Canada.

 

The CCFF provides supplementary funding to 38 CF paediatric and adult clinics across Canada.

 

Lung transplantation was unheard of.

 

The Foundation provides supplementary funding to five transplant centres across Canada.

 

In 1961, the CCFF awarded $9,000 for a summer student research program.

 

In 2008, the CCFF will award more than 50 research projects, totaling $6.3 million and spending more than $2.0 million in grants to CF clinics and transplant centres.

Last revised: July 2008